Tuesday, February 9, 2010
Surgery Date & Set Back
Talk about a LONG day. 5 hours in the car + kiddos barely napping + pouring rain outside + bad news = breakdown! Good thing Gigi came along with her bag of snack and crafts to keep Danica occupied while Brinley and I got down to business. We had a setback today. Brinley was getting good sound from her hearing aids over this past month but her new test today showed what little hearing she did have has vanished. Hearing aids are no longer assisting her. Total silence. This is hard because my spirit have been lifted the past few weeks knowing she's hearing some speech however that's not the case. Might be a quick progressive loss, still don't know the cause, just desperately want to try and "fix things". On top of the bad news, surgery was set back to March 29th since the Dr. had a full schedule. So we wait.
Tuesday, February 2, 2010
CT Scan is over with....bye-bye Oakland
Just an update for those of you asking about Brinley's apt.'s last Friday. She did good for what was expected of her. Poor girl didn't eat for 19 hrs (7pm Thurs night to 2pm Friday afternoon) She's amazing, anything else would be an understatement.
Look at the pic, she even flashed a smile as both hands were bleeding from IV's!Her big sister Danica was pretty grumpy when I took her picture. You wonder which child just had anesthesia! Ha!We did have one minor set back. Our surgery was scheduled with Oakland Children's for Feb 26th, both ears. I was just informed that they will only be doing surgery on one ear and will put her other ear on a waiting list for 6mo down the road. Reason? "Administration change in policy". Real reason? $$$$$$$$$ I was told my insurance company (Blue Shield) is slow to reimburse, however they do reimburse. Pretty annoying. Anyhoo, I worked even harder to get Brinley's surgery transferred to Stanford and today, whhhhhhhaaaalllllaaaaaaaaa. I've accomplished just that. We have a meeting with Dr. Blevins Feb 9th at Stanford and will get a tentative surgery date for BOTH ears at that time! This is really great news for Brinley, and for Mommy. I can stop stressing so much. Talk Soon~
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