New Year, New Outlook

We are just getting started on Brinley's journey...
Dec 2009 we got the diagnosis of profound bilateral hearing loss. English Terms: Brinley is deaf.

I'll be documenting Brinley's progress every step of the way. This will be my outlet in getting my thoughts on paper (well, computer) and maybe you will get something out of this too. You will learn what it means to be deaf, possibly be inspired to pick up a few sign language books or next time you see a child with hearing aids or Cochlear Implants you will know what it took for that child to get where he/she is today.

Modern technology is amazing!

"HARD DOES NOT MEAN IMPOSSIBLE"
Brinley Shay Reiswig


Sisterhood

Sisterhood

If we only knew then what we know now...

ALL SMILES WITH MY HEARING AIDS

ALL SMILES WITH MY HEARING AIDS

Mommy's Angel

Mommy's Angel

Upcoming Appointments

Jan 7th, Modesto

2:30pm Meeting with MCS/ SCOE Early Start Eval.


Jan 15th, Oakland
9:00am Speech Therapist Apt
10:00am Family Psycologist Apt
2:30pm First Audiologist Apt with Sara
3:30pm Meeting Dr. Murray, Implant Surgeon

Jan 29th, Oakland - Sedated CT Scan





Stanford here we come!


Feb 9th Meet Surgeon Dr. Blevins, get surgery date


Monday March 29th, 5 hr Surgery at Stanford

Activation 4/20 and 4/21

Follow up 5/17 and 5/18


Tuesday, April 27, 2010

The new Bionic Brinley


So, we've come a long way in the past few weeks. Brinley has pretty much made a full recovery. Her new Cochlear Implants are on every waking hour. We are still have issues when they are first turned on. She cringes and cries when the magnets make contact. Our Audi explained that adults with CI's described the initial turn on as a wooooooosshhhh of electricity. I threw together a couple headbands (which have worked wonders) in keeping her ears on. Trying to keep the processors on without the headbands was driving me insane so I'm loving our new system. Being that Brinley's nerves haven't been stimulated before, it's a scary experience for her. With that said we are making progress. Today her DHH Teacher came over and noted Brinley not only responding to her drum and tangerine toy, Brinley seemed to locate where the sound was coming from. That's the biggest thing for us right now, sound association. If the phone rings she has no idea it's the phone ringing. All she hears is a loud and constant sound with no idea where it's coming from. I'm narrating everything I do. "Mommy is pouring a glass of wine, mmmmmmmmmmm, yummy"...haha...you get the drift.
Our weeks are filled with speech therapy, DHH visits, etc. Danica has been saying her stomach hurts alot and I'm wondering if it's just the attention thing. Rod and I try very hard to make sure our time and love is spread even between the girls but Danica must see that Brinley gets more 1-1. Last night I caught Danica in her room trying to put on Brin's toy CI processor on her ear. When I walked in she asked if I can take her to the doctor and get ears like Brinley's. Adorable and heartbreaking all at once xoxo

Saturday, April 3, 2010

Wake me up from this nightmare...



Ok, so we have one daughter home from the hospital and the other has just checked in. Danica has been in the hospital since Fri at 7am. They have taken tons of blood and stool samples to find a cause for her severe symptoms. Dr. suggested possible Salmonella. Rod and I are doing our best to flip flop rotations so one of us is always with the girls. This is the worst timing possible. Gigi, Great Grandma Sheepy and Aunt Sandy all help us out yesterday. Dishes were done and laundry folded when I got home. So thankful for any help that comes our way these days. I stepped on the scale thinking I'm wasting away to nothing. To my horror I've gained 6 pounds over the last 2 weeks. What's up with that?????????? Trying to find some humor in all of this madness. Heading to the hospital.