New Year, New Outlook

We are just getting started on Brinley's journey...
Dec 2009 we got the diagnosis of profound bilateral hearing loss. English Terms: Brinley is deaf.

I'll be documenting Brinley's progress every step of the way. This will be my outlet in getting my thoughts on paper (well, computer) and maybe you will get something out of this too. You will learn what it means to be deaf, possibly be inspired to pick up a few sign language books or next time you see a child with hearing aids or Cochlear Implants you will know what it took for that child to get where he/she is today.

Modern technology is amazing!

"HARD DOES NOT MEAN IMPOSSIBLE"
Brinley Shay Reiswig


Sisterhood

Sisterhood

If we only knew then what we know now...

ALL SMILES WITH MY HEARING AIDS

ALL SMILES WITH MY HEARING AIDS

Mommy's Angel

Mommy's Angel

Upcoming Appointments

Jan 7th, Modesto

2:30pm Meeting with MCS/ SCOE Early Start Eval.


Jan 15th, Oakland
9:00am Speech Therapist Apt
10:00am Family Psycologist Apt
2:30pm First Audiologist Apt with Sara
3:30pm Meeting Dr. Murray, Implant Surgeon

Jan 29th, Oakland - Sedated CT Scan





Stanford here we come!


Feb 9th Meet Surgeon Dr. Blevins, get surgery date


Monday March 29th, 5 hr Surgery at Stanford

Activation 4/20 and 4/21

Follow up 5/17 and 5/18


Wednesday, June 8, 2011

Brinley + Stanford = Love!

It's been 7 months since Brinley's last "tune up" on her fairy ears. I took her for what turned out to be a 3-hour appointment. For 2 years old, she did great! I’m a little exhausted, the drive home took almost 3 hours in rush hour traffic. No bueno!

Diagnosis: Brinley has a perforated left ear drum (hole in eardrum that never closed up from her surgery last year and still has a ear ache in right ear drum with fluid) Poor girl! On the bright side, Brinley sound booth reflected she’s hearing between 20-25 decibels! That’s fantastic since average hearing is set at @ 20 db. If anything, she has average to mild hearing loss. Better than being profoundly deaf as she was a year ago, Dr. said she could stand next to a jet engine and not even flinch. Hooray!!!!

Our audiologist Jan was surprised at the strides Brin has taken since her last appointment. In the video clip Jan has Brinley's ear hooked up to the computer and she gives off a series of internal beeps. When Brinley hears the beep, she puts a block on the pyramid. She’s really growing into her ears and loving to listen. What a gift!

We are doing good on the Ling sounds:Ahhhhhhh, eeeeeee, shhhhhh, SSSSSS, MMM but still struggling with oooo --for all you CI Moms and Speech Therapists that know this lingo. For you CI parents....a fellow CI family created a Ling 6 Iphone application. I downloaded it, here's the format below. Search Ling 6 in itunes.
Brin is exhausted, nighty night!

1 comment:

  1. HI
    My name is Jenna and i came across your site. brinley is an amazing, courageous strong and determined fighter. She is a brave warrior, smilen champ and an inspirational hero. I was born with a rare life threatening disease and love it when people sign my guestbook. www.miraclechamp.webs.com

    ReplyDelete